Register here: http://unitenight.kintera.org/mesa
unite@night is a collection of one-mile, casual evening walks around the country that bring together people who are living with the devastating effects of Chiari malformation, syringomyelia, EDS, and related disorders.
unite@night will support CSF Chapters to provide education and increase awareness while funding advocacy work and research projects that can potentially find answers to help those who are fighting these disorders.
The Chiari & Syringomyelia Foundation (csfinfo.org) hosts an annual awareness and fundraising Event each year to benefit the education of patients and the medical community. The Organization is also involved in joint research projects with other organizations to help find a cure for Chiari, syringomyelia, EDS and any related disorder as currently there are treatments but no CURE. These conditions are considered rare and affect all ages, from very young infants to older adults, often with symptoms that are debilitating.
Walk with us to raise AWARENESS and FUNDING to help FIND A CURE!!
If you wish to donate @ the Walk in Mesa, Park rules state,”No funds be exchanged on Park Grounds”! You must register to donate before the Walk on Saturday, 10-1 @ http://unitenight.kintera.org/mesa
facebook page https://www.facebook.com/events/166258230452587/
You can still register to participate in the Walk @ Red Mountain Park, Falcon Ramada, beginning 6:00 pm but you cannot donate!
Chiari, syringomyelia, EDS or a related disorder can make a person feel powerless. But what if you– just YOU– could be the one thing that makes their lives better? YOU can be the hope for a better future!
unite@night is a collection of one-mile, casual evening walks around the country that bring together people who are living with the devastating effects of Chiari malformation, syringomyelia, EDS and related disorders.
Bring your own awareness colors or join us in going black & gold to represent all patients who struggle with disorders like Chiari, syringomyelia, EDS and others. You only need to walk as far and raise as much as you can. Every step, roll or crawl is a move in the right direction towards relief from pain for so many.
We hope that with help from walkers like you we will raise $1 million this year for educational, advocacy, awareness and research programs!
Here are some of the amazing projects that walkers like you have already helped support:
Consider Chiari. Even though over one million families in the US are affected by these disorders, many medical professionals either have never heard of them, or aren’t exactly sure how to treat their patients most effectively. Your unite@night support has helped educate hundreds of professionals. In the first half of 2016, alone, your support will help to educate over 200 medical professionals!
Educational Lecture Series. Support for unite@night helps local CSF Chapters host educational lectures for patients, families and the general public, too! These lectures help people learn more about these conditions, what they can expect after diagnosis or treatment, and how to cope. The lectures are always filmed and made available online so people who live in one city have access to the same information as someone who lives in another. Even more importantly, they help Chiari, syringomyelia, EDS and related disorder patients and families meet in person to talk and offer support.
International Patient Database. Research is absolutely critical to helping doctors prepare better treatments for patients. Your donations to unite@night are helping providing the seed money for a huge international patient database that will help determine the best treatments for patients not just with Chiari, syringomyelia, and EDS, but also who suffer from related disorders like dysautonomia, psuedotumor and more.
Advocacy & unite@thehill. Donations to unite@night help sponsor CSF’s annual walk to Capitol Hill, where patients and families are able to bring their personal voice to Congress and the policy makers who have the power to influence their access and quality of care.
UNITE@NIGHT WITH US AND BE THE HOPE!
Register at the facebook address- https://www.facebook.com/events/16625823045287/
unite@night Walk Event Information:
Register at the facebook address OR at http://unitenight.kintera.org/mesa
Saturday 6:00 pm check-in Walk-7:30 pm
Walk distance, 1 mi. Wear your own colors!