Monthly Archives: September 2016

CSF unite@night Mesa Walk: 10-1

Register here: unite@night is a collection of one-mile, casual evening walks around the country that bring together people who are living with the devastating effects of Chiari malformation, syringomyelia, EDS, and related disorders. unite@night will support CSF Chapters to … Continue reading

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Fall Support Group Meeting, 10-8-16!

St. Joseph’s Hospital and Medical Center, 350 W. Thomas Rd. Phoenix 11:00 am to 1:30 pm- speaker will begin @ 11:15!Join us for our Fall Meeting, in the Mercy Conference Room, across from Starbucks (look for the signs) and hear … Continue reading

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CCWAA AZ 16 is big success!!

    Conquer Chiari Walk AZ 2016 preliminary totals: We had 461 attend the walk yesterday…hopefully everyone remembered to sign in :). So far, Phoenix has raised $15,201.91 for the 2016 Conquer Chiari Walk! Thank you!!! If you weren’t able … Continue reading

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Conquer Chiari Walk: this Saturday!!

Tomorrow is the big day!! Thank you AZ…our site just hit 10k raised!!! Pre-Registration is closed, but you can still donate online! Online registration closed last night with 374 pre-registered. Thank you!! AZ Rocks! You can register at the walk! … Continue reading

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Allysa Seely, Local Athlete @ Rio Paralympics, in Paratriathlete Events!

Sport: Paratriatholon Career Highlights 2015 Paratriathlon World Champion Allysa enjoys hiking, competing in triatholons and playing with her dogs. She volunteers at a children’s hospice center and works to teach others with disabilities that they are still capable of everything … Continue reading

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