Category Archives: Articles/Information

Coping with Chiari and Syringomyelia

By Shawna Countryman A diagnosis of syringomyelia (SM) and/or Chiari (CM) may affect us in many different ways. Dealing with the various facets of a long-term condition can leave one feeling alone, frightened and confused. Not only will we have … Continue reading

Posted in 2016, Articles/Information, Uncategorized | Leave a comment

Symptoms of Syringomyelia, ASAP.org

Symptoms of Syringomyelia (not limited to) Motor *Muscle weakness and atrophy, particularly in hands and arms *Increased muscle tone (stiffness or spasticity) in arms and/or legs *Abnormal curvature of the spine (scoliosis) Sensory *Decreased feeling in hands and arms. Depending … Continue reading

Posted in 2016, Articles/Information, Educational and informative news | Leave a comment

Chiari Malformation: An Overview by Rick Labuda, conquerchiari.org

   

Posted in 2016, Articles/Information, Educational and informative news, Research | Leave a comment

Conquer Chiari Walk Across America 2015, Arizona

The 2015 Conquer Chiari Walk Across America was a HUGE success with more than 12,000 walkers raising over $600,000 for research!!! Thank you to all the people who joined us for this incredible event and thank you to all the … Continue reading

Posted in 2015, All videos, Articles/Information, Conquer Chiari Walk, Pediatric Parents and Young Adults, Research | Leave a comment

2014 ASAP Youtube Presentations- Click for desired Youtube of ASAP Conference, 2014

Erol Veznederoglu, MD “Defining and Recognizing Symptoms” Bryn Martin, MD “Research Updates from the Ohio Research Center” Robert Keating, MD “Pediatric Chiari Malformation” Why to Attend the ASAP Conference? Jennifer Yanoschak, MD “Pseduo Tumor” Thank you, ASAP! Sharing your recording … Continue reading

Posted in 2015, All videos, Articles/Information, Educational and informative news | Leave a comment

AZ Syringo Chiari Support Group Meeting 10-25-14 @ PCH/BNI

We will meet in the Neuro Science Classroom – 3rd floor of the ambulatory Building. Please be prompt, or even early! Dr.Adelson, like most busy neurosurgeons, cannot wait for you!

Posted in 2014, Articles/Information, Meet and Greet, Pediatric Parents and Young Adults | Leave a comment

Az Support Group Meeting-8-30-14

2014phoenix.flyer On Saturday, August 30th, we will meet in Dining Room A across from the cafeteria, @ St. Joseph’s Hospital in downtown Phoenix, 350 W. Thomas Rd. Parking is available @ the 6th Ave. Parking Garage at no charge or … Continue reading

Posted in 2014, Articles/Information, Conquer Chiari Walk | Leave a comment