AZ Syringo & Chiari Support Group Meeting-4-18-2013

At our meeting in March, Beth Wells, the AZ site organizer for Conquer Chiari’s Annual Walk Across America, spoke about the need for finding sponsors and volunteers for our Walk. Included in the email are attachments you can print and take with you for the sponsors to fill out. The Corporate Sponsor Opportunities Form lists the various ways and levels that corporations may become involved with the Walk. The Donated Items Form and The Phoenix AZ Flyer give specific information about our participation in the 2013 6th annual Walk Across America to Conquer Chiari. Please give of your energy and time to help make this one of the biggest and best Walks, ever!

Those of you who are diagnosed with syringomyelia- please be aware that the C&S Patient Education Foundation was established for research in both Chiari and syringomyelia and a large amount of information is available at In fact, the initials C & S are for Chiari and syringomyelia and the Foundation was formed in 2003 by Rick Labuda who was diagnosed with both of these conditions.

Please help contribute in any way you can- with a neighborhood fundraiser, challenge your friends to a bowling party, or host online games. Anything legitimate to get a sponsor’s name placed on the back of our t-shirt! Rules and regulations are stated on the forms so please help us make this year the biggest and OUR WALK one of the largest fundraisers in the Walk Across America to Conquer Chiari and fund research for treating these conditions.

ASAP’s Conference news is also on our list of exciting news and the very latest is at A list of confirmed speakers and topics and those pending are shown as well as all conference and hotel information fees. This is an opportunity to hear and meet the top research and medical personnel that specialize in Chiari, syringomyelia, tethered cord, and related neurological conditions. Rarely is the conference site located this close to Phoenix and Tucson and the schedule of speakers is another enticement. Limited scholarships are available by applying through the ASAP office and

Our meeting is this Thursday, April 18th 11:00am.-1:00pm
St. Joe.Rehab Building, Conference Room
114 W. Thomas Rd
Phoenix, AZ 85013
1st. Ave. & Thomas Rd. NW Corner

Please join us for an informal discussion of “Memory”, led by Dianna Contreras. Family and friends are welcome to attend.

AZ Syringo & Chiari Support Group


About AZSyringoChiari

Support Group for rare neurological disorders.
This entry was posted in 2013, Meeting Recap. Bookmark the permalink.

1 Response to AZ Syringo & Chiari Support Group Meeting-4-18-2013

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s