August 2011 Meeting

HELLO EVERYONE:
Well how is everybody?? Surviving this hot and humid weather – we too wish it would just hurry up and rain, already!!!
Anyway, here we go – frankly we are all ready to get back on track with our meetings….hope you all are ready too!!!
REMEMBER THE CONQUER CHIARI “WALK ACROSS AMERICA” WALK HAPPENING ON SEPTEMBER 17TH. TO BE HELD AT THE ANTHEM COMMUNITY PARK, ANTHEM. REGISTRATION @ 7:00 AM. WALK @ 8:00 AM. RAFFLE AFTER WALK AND MORE.
So gear up everyone and get on board!! Beth still needs some help. She needs more raffle items and your input as to prices for prizes. Also, for you who were concerned about getting a sit down job – well, they are still available. Here is what is available: Registration table people – 4; T-Shirt hand-out – 3; Raffle ticket, Magnet, Bracelet sales – 3-4. Please email Beth Wells at ChiariWalkAZ@cox.net and let her know what you would like to do. She needs these spots covered, so we need to offer our help. Remember we are all in this together to find a cure for Chiari and Syringo.

THIS IS OUR LAST MEETING BEFORE WALK SO PLEASE TRY TO MAKE IT SO WE CAN COVER EVERYTHING……Thanks to all!!!!
Hope, Kathie, and I attended the ASAP Conference in Denver, hosted by Dr. Oro. There were several wonderful doctors discussing some very interesting topics. So we came home with a lot of good information, we would love to share and talk about. Really good stuff about our good friends: Chiari and Syringo!! Everyone was impressed with our support group, the fact that we actually meet once every month and that our group has been consistent since 2000. Pretty cool everyone….you all make it happen!!
Perhaps Dianna will be able to give us an update about her findings with regards to setting up additional meetings in the evenings as opposed to daytime meetings only. Also we are investigating the possibility of returning to our old time slot of 11:00 am – 1:00 pm, however, might be different day. Don’t know if that a doable with St. Joes Outpatient Rehab at this time. Hope to know before we all meet this up coming meeting at 1:00 pm – 3:00 pm Aug 18 th.
What: AZ Syringo & Chiari Support Group Meeting When: Thursday, August 18th, 1:00 pm – 3:00pm Where: St. Joseph Outpatient Rehab, Conference Rm 114 W. Thomas Rd (S/W corner of Thomas Rd. and 1st Ave.)
As you already know our Blog spot address is: www.azzsyringochiari.blogspot.com. But you may not have known that we have a group email: azsyringochiari@cox.net. Kathie and I are going to start sending out “group emails” thru that site. So please be aware that you will be getting GROUP UPDATES, REMINDERS AND MEMOS FROM THAT GROUP EMAIL ADDRESS. So if you have a scam/virus protector etc. make sure that you and your email recognizes that group email address as a valid address. It will make it easier on us and make sure that your own emails are more secure. Thank you very much.
Finally, after we complete this Walk Across America project successfully, we would like to get back on track with our speakers. So if you have any subject to suggest or a speaker in particular you would like to have speak, let us know asap. Thank you again.
OK THAT IS IT FOR NOW. PLAN TO MAKE THIS MEETING TO GET OUR FINAL MARCHING ORDERS FOR THE UPCOMING SEPT 17TH WALK. SEE YOU THERE …….. PLEASE AND THANK YOU!!!!!!
Shelley & Kathie AZ Syringo&Chiari Support Group

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About AZSyringoChiari

Support Group for rare neurological disorders.
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